What is CHD?

About 1 in 100 babies are born with a structural change in their heart which is called a congenital heart defect. You can learn more about different types of CHD by visiting the American Heart Association website.

What have you learned?

Our CHD study started in 2010. We now know that about 3 of 10 kids with CHD have an underlying genetic cause. Through our study CHD-GENES, the CHD branch of CARE for Kids, we have expanded our understanding of the genetic causes of heart defects.

How do I enroll?

If you or your family would like to be a part of the congenital heart disease study, click this link to schedule a time to enroll remotely. [INSERT CALENDY LINK]

Looking for more information?

You can contact genetic counselor and research coordinator, Emily Griffin at

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